Development of a Toolkit for Collaborative MS Research

Dr Jane Desborough

Dr Jane Desborough

Australian National University, ACT

| Better treatments | Social And Applied Research | Incubator | 2019 | Investigator Led Research |
SUPPORT PROJECTS WITH THIS RESEARCH FOCUS

Summary

It is vital to directly involve people with MS in the research into MS. People with MS can derive greater benefits including an improved sense of control and decision-making capacity, if they are involved as co-designers of technologies and interventions designed to help them manage their health.

To ensure that the engagement between researchers and people with MS in the development of research studies is meaningful and productive, a number of conditions must be met. This includes a welcoming team atmosphere, realistic and clear expectations for patient research partners, and a sense of reasonable contribution to the research. A potential barrier, as with any collaborative research effort, is that researchers and persons with MS may have fundamentally differing approaches and perspectives on things such as the strength of evidence required and the potential benefits of the research.

Dr Jane Desborough and her team aim to develop a set of tools for collaborative partnership-based research by scientists and people with MS. The tools will aid the development of a platform for communication about differences in perspectives on the nature, purpose, and values underlying the research. To do this the team will use a specific MS research project underway at the Australian National University to develop and test their tools and additionally, they will aim to develop materials to assist researchers and people with MS to collaborate in other fields of MS research.

Updated: 23 January 2019

Updated: 02 January, 2019

Stages of the research process

Fundamental laboratory
Research

Laboratory research that investigates scientific theories behind the possible causes, disease progression, ways to diagnose and better treat MS.

Lab to clinic timeline: 10+ years
Translational
Research

Research that builds on fundamental scientific research to develop new therapies, medical procedures or diagnostics and advances it closer to the clinic.

Lab to clinic timeline: 5+ years
Clinical Studies
and Clinical Trials

Clinical research is the culmination of fundamental and translational research turning those research discoveries into treatments and interventions for people with MS.

Lab to clinic timeline: 1-5 years

Investigator

Grant Awarded

  • Incubator Grant

Total Funding

  • $20,196

Duration

  • 1 year - starting 2019

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