Australian MS Longitudinal Study (AMSLS)

For researchers and health professionals

The Australian MS Longitudinal Study (AMSLS) research platform is available for researchers, MS societies or other stakeholders who can benefit from this resource. The AMSLS study can provide existing de-identified data and assist in collecting new data.

Scroll down for more information on data and survey requests and current AMSLS collaborative projects.

Data Request

Data Requests

There are two main types of data:

  • Summary data: Simple tables and figures can be provided on a small number of data fields. This request might be suitable for those who have limited analysis skills, and/or require small amounts of information.
  • Raw data: When more data is required, a de-identified dataset can be provided.

To apply to access the existing AMSLS data:

  • The AMSLS Data Request Form should be completed.
  • The request is reviewed and approved by the AMSLS Steering Committee.
  • Preliminary inquiries for feasibility or funding purposes can be done in advance.
  • For projects that results in publications, an official collaboration will be established, feedback will be provided on research plans and AMSLS members will become co-authors on publications.
  • The data can only be used for the stated purposes.
Data Collection

Data Collection

The AMSLS can include a number of questions to AMSLS surveys, or can run standalone surveys for you. To apply to have your questions included in an AMSLS survey:

  • The AMSLS Request for Survey Questions Form should be completed.
  • The request is reviewed and approved by the AMSLS Steering Committee.
  • For larger projects, an official collaboration will be established, feedback will be provided on the survey questions and research plan, and AMSLS members will become co-authors on publications.
The AMSLS Dataset

The AMSLS dataset

For background on current projects please refer to the current projects section on the AMSLS overview page. Published study summaries can be found on the key findings page.

For a list or to request copies of past surveys please contact AMSLS.info@utas.edu.au.

Current collaborations

Collaborator(s) Institution Area of focus Project description
Associate Professor Pieter van Dijk
Associate Professor Andrea Kirk-Brown
Monash University Employment Workplace wellbeing: Keeping those with MS happy in the workforce including looking at the interplay between disclosure of MS at work, support at work, and intention to quit.
Dr Claudia Marck University of Melbourne Modifiable Lifestyle Factors Maximising healthy lifestyle decisions with the challenges of MS: Supporting diet, exercise, smoking and alcohol choices to optimise well-being.
Dr Yvonne Learmonth Murdoch University Physical Activity Physical activity: Does it matter whether you live in a regional or remote area?
Dr Cynthia Honan University of Tasmania Sleep Maximising sleep: Examining factors that most influence sleep and assessing the impact on quality of life and daily functioning.
Professor Andrew Palmer Menzies Institute for Medical Research Economic Impact Health economic impact of MS: Examining the direct and indirect costs associated with MS to individuals and Australia in general.
Belinda Bardsley (President MS Nurses Australia), Sue Shapland (MS Societies National Services Leadership Group) MS Australia MS Nurses Examining ways to maximise the availability and health care provided by MS Nurses
Dr Lisa Grech Swinburne University of Technology Feelings of depression Examining whether people with MS are appropriately treated for depression and whether anti-depressants potentially have a positive effect on the progression of disease.
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