Australian MS Longitudinal Study (AMSLS)
The Australian MS Longitudinal Study (AMSLS) is a survey-based research study that has been running since 2001 and now has over 3000 people completing research surveys each year. The study is designed to provide real life data about MS, which can be used by all MS medical and support services to effect change for the better for those with MS, their families and carers.
The AMSLS is one of MS Research Australia’s collaborative research platforms. The Study is a partnership between MS Research Australia and the Menzies Institute for Medical Research (University of Tasmania) and all projects are approved by the AMSLS steering committee, which includes representatives from people with MS, the MS societies, MS nurses, neurologists and MS Research Australia.
We encourage all Australians with MS over 18 years of age to register with the study and share their story. Enquiries from researchers wishing to collaborate or utilise this research platform are also welcome.
If you are a person with MS and have any question or would like further information please contact the Australian MS Longitudinal Study team.
Australian MS Longitudinal Study – Steering Committee Members
Dr Elizabeth MacDonald (Chair) – Rehabilitation physician, St Vincents Hospital Melbourne and Epworth Rehabilitation Camberwell; Chair MS Research Australia Research Management Council Social and Applied Research Subcommittee
Associate Professor Ingrid van der Mei – Australian Research Council Future Fellow; AMSLS Project Manager, Menzies Institute for Medical Research
Dr Mary Webb – Person affected by MS; MS Australia National Advocate
Suzanne Hadley – Person affected by MS; MS Australia National Advocate
Deidre MacKechnie – Chief Executive Officer, MS Australia (representing MS Australia, and state MS Society CEOs)
Belinda Bardsley – MS Nurse & Research Manager, Austin Hospital, Melbourne, VIC; President MS Nurses Australasia
Sue Shapland – General Manager, Member Services, MS Society of WA; representative MS Societies National Services Leadership Group
Dr Julia Morahan – Head of Research, MS Research Australia
As at January 2020